Friday, August 16, 2019

Startling Reality on Awareness: Part 1 ~ The What

 Hello, Thanks for stopping by!
Today, I am doing my first Awareness post, in a series, that doesn’t surround the Link to the T-Shirts that I began to create for Awareness.

I have many different aspects that I would like to cover, which is why I thought a series would work well.
I do my very best to have all of my facts correct but sometimes there is information that is confusing or difficult for me to pin down.
If you realize I have incorrect information, please let me know so I can research it more and correct my error. {All Links are highlighted in yellow. Those pertaining to Axel or past posts will be purple and links to reference websites are blue.}

Right away, the information that I began to find while researching, made my jaw hit the desk! As I search, I’m usually compelled to look into various aspects of things, to better understand it. That doesn't mean that I will share every little piece of information with you, but I might, sometimes. If I don't address something that you are curious about, please ask me, I would be happy to dig into it and help in any way that I can :)
Helping to raise awareness for my guy and others, is my passion, please ask! 
I am sure you can imagine, there is more than a TON of information on the subject of diseases / conditions.
I am not going to do a 300 page book, right now, (lol), but I am going to touch on some information that I feel should be well known.
Not that it is, but I feel it should be.

I've collected the following information from Google, as well as several different websites pertaining to conditions and even foundations or dictionaries, to verify where necessary.
I will do my best to provide all of the reference links throughout or at the bottom of the post.

Ok, then! Here we go!

Did you know that over 95% of the world has health problems?? Over 1/3 of that 95% has more than 5 ailments! 

There are 4 primary types of diseases.
(I prefer the term conditions, and may use both terms  interchangeably.)                                      
   1) Infectious 2) Deficiency, 3) Hereditary, 4) Physiological
1) Infectious diseases are disorders caused by organisms — such as bacteria, viruses, fungi or parasites. Many organisms live in and on our bodies. They're normally harmless or even helpful, but under certain conditions, some organisms may cause disease. Some infectious diseases can be passed from person to person. A few Examples- Influenza, Measles, Hepatitis B & C, TB or Tuberculosis, AIDS/HIV
2) Deficiency disease is caused by the lack of some essential or important element in the diet, usually a particular vitamin or mineral. Examples- Protein Energy Malnutrition, Scurvy, Rickets, Beri Beri, Hypocalcemia, Osteomalacia, Vitamin K Deficiency, Pellagra, Cheilosis, Menkes Disease, Xerophthalmia, among others.

3) Hereditary diseases are passed on from one generation to another through defective genes. These are transmitted in the same family. The chromosomes in humans are responsible for passing the traits from the parent to the offspring. A few Examples- sickle cell anemia, Downs Syndrome, cystic fibrosis, or hemophilia

4) Physiological disorder is sometimes used to refer to what is more frequently known as mental disorders or psychiatric disorders. Mental disorders are patterns of behavioral or psychological symptoms that impact multiple areas of life. These disorders create distress for the person experiencing these symptoms. Physiological factors that affect the fate of drugs in the body and thereby have effects on their pharmacology and toxicology involve the systems that control absorption, distribution, metabolism, and excretion. The main factors are disease, genetics, and age.
Examples- Asthma, Glaucoma, Diabetes,  Anxiety, Depression, Eating disorders, Personality and Psychotic disorders..

Now that we have a little better understanding of the primary types, let's look at a few other important pieces of this puzzle..

While the information below falls into the categories that we just covered, It feels important to address these separately, as well.
Lest we forget why we are on a mission to raise Awareness!

There are 80 Autoimmune - An autoimmune disease results from a mistake made by the immune system. The body's immune system accidentally recognizes healthy cells as foreign invaders and begins to attack them. Research shows that autoimmune diseases tend to have underlying genetic, racial, and gender components. They are not curable but there are treatments that suppress the immune system, to stop that reaction. Examples are Rheumatoid Arthritis (I have personal knowledge of this painful condition), juvenile (type 1) diabetes, polymyositis, scleroderma, Addison disease, vitiligo, pernicious anemia, etc.     {}

The Rare Disease chart below shows some startling statistics of their {Rare Disease} impact. I found this information at Global Genes. You can visit their link to see more. Or watch for my next post!

{Rare Disease status is achieved when it affects fewer than 1 in 2,000 people.}

That's right. 7,000 types of Rare diseases. It’s estimated that somewhere between 25 and 30 million American’s are affected.
Examples are Dandy-Walker Malformation (Axel's story), Huntington disease, Muscular Dystrophies, Neuro adaptation, PTCD -Ponte Tegmental Cap Dysplasia.. I could go on forever, it seems.

80% of rare conditions are genetic.

1 in 10 people are affected and yet;
95% lack an FDA approved treatment.
1 in 2 rare conditions does NOT have a foundation!

In future posts, I will delve more into the scary statistics that I have shown above.

Autoimmune diseases are recognized as a major health crisis in the United States. Today, 50 million Americans—80 percent of whom are women—suffer one or more autoimmune conditions (development of a single autoimmune condition, often means you are more likely to develop others, later).
Thirty years ago, only 1 in 400 people developed an autoimmune disease.
{but 30 years is light years ago, in terms of a lot of things. I wonder if it was just altogether a different time and people didn't go to the doctors for those pains that they deemed a result of age or circumstance}
  • Researchers have identified 80-100 different autoimmune diseases and suspect at least 40 additional diseases of having an autoimmune basis. These diseases are chronic and can be life-threatening.
  • Autoimmune disease is one of the top 10 leading causes of death in female children and women in all age groups up to 64 years of age.
  • AARDA - America Autoimmune

    I can't quite find a clear answer on how many "common conditions" there are.. I can only assume there are a LOT, but I will be sure to let you know if I can pin that down.

    I would also like to look at 2 other "conditions" that may or may not fall under "disease", depending on each situation. Deafness & Hearing Loss and Blindness & Vision Loss.

    While there are definitely conditions that cause both blindness and hearing loss or deafness (Examples are Retinitis Pigmentosa and Usher syndrome among others). These can also have genetic and even environmental connections. Not only can your parents, grandparents, etc, pass down a gene that causes either of those things, (among many others), your environment can also cause them. You might think it's a myth that you could lose your hearing if you have your radio up too loud, go to a lot of concerts, or even just work in a factory setting. It is not a myth. Those things can have a big impact on your hearing! It may not cause deafness, necessarily, but hearing loss is nothing to scoff at!
    Obviously, getting hit or poked in the eye, could easily cause blindness, but it can also come over time or suddenly, with or without notice. Developing eye pain or blurred vision is a reason to get it check out, as soon as possible! It could be from a variety of different causes, including stress!

    Let's delve more into  the complicated issue of deafness / Hearing loss:

    Sound is measured in units called decibels (dB). Sounds of less than 75 decibels, even after a lengthy exposure, are unlikely to cause hearing loss. However extended or repeated exposure to sounds at or above 85 decibels (approximately the level of a vacuum cleaner) can cause hearing loss

    • Mild hearing loss: Hearing loss of 20 to 40 decibels.
    • Moderate hearing loss: Hearing loss of 41 to 60 decibels.
    • Severe hearing loss: Hearing loss of 61 to 80 decibels.
    • Profound hearing loss or deafness: Hearing loss of more than 81 decibels.


    Noise SourceDecibel Level (dB)How long can you listen without protection?
    Jet take off1300 minutes
    Ambulance siren109Less than 2 minutes
    Personal music player at maximum volume1063.75 minutes
    Pop/Rock concert1037.5 minutes
    Riding a motorcycle9730 minutes
    Using an electric drill941 hour

    Over 5% of the world's population – or 466 million people – has disabling hearing loss (432 million adults and 34 million children). It is estimated that by 2050 over 900 million people – or one in every ten people – will have disabling hearing loss.
    Up to 20 decibels below the hearing threshold is still considered to be normal hearing.
    There are 3 main types of hearing loss- sensorineural, conductive, and mixed. There are also four levels of hearing loss severity: mild, moderate, severe and profound. All four degrees of severity can be found in most types of hearing loss.

    That is another topic that I have personal experience with: Hearing loss and deafness. Only this time it's my son, Axel, and not myself. Later in the series,  I will go into detail on our experience. I have told most of Axel's story in previous posts, if you don't want to wait ;) Axel's Hearing-Loss Post(s)

    Now on to Blindness:
    The WHO (World Health Organization) estimates that in 2012 there were 285 million visually impaired people in the world, of which 246 million had low vision and 39 million were blind. Of those who are blind 90% live in the developing world.
  • Globally, it is estimated that approximately 1.3 billion people live with some form of vision impairment. I know many people that wear glasses,myself included!
  • Approximately 80% of all vision impairment globally is considered avoidable.
  • The majority of people with vision impairment are over the age of 50 years.
  • With regards to distance vision, 188.5 million have mild vision impairment, 217 million have moderate to severe vision impairment, and 39 million people are blind. With regards to near vision, 826 million people live with a near vision impairment.
    Population growth and aging will increase the risk that more people acquire vision impairment.  
    Distance vision impairment:
    • Mild – presenting visual acuity worse than 6/12
    • Moderate – presenting visual acuity worse than 6/18
    • Severe – presenting visual acuity worse than 6/60
    • Blindness – presenting visual acuity worse than 3/60

    WHO is developing a World report on vision to provide authoritative evidence on the magnitude of vision loss globally, as well as its prevention, treatment and rehabilitation.
    WHO's link is below, if you would like to learn more about the World vision report, check out their site!

    All of that definitely needs to sink in, as there was a LOT of information, but I think it is a great start to my series!
    Next in the series is - "Startling Reality on Awareness: Part 2 ~ The Numbers"
    We will look into some big numbers and what they mean for Awareness.
    The good, the bad and the reason's why.

    I hope you are as interested in this topic as I am!
    Follow me so you can get the next part right in your email!
     We CAN'T be Aware of what we DON'T know!

    Thank you all for reading!
    Take good care and God Bless <3

    Reference Links not listed above:
    Benaroya Research Institute focused on identifying causes and cures for autoimmune and immune system diseases. Very in depth definition of diseases and specific information on differences between disease, disorder, morbidity, sickness and illness

    World Health Organization ie WHO

    Centers For Disease Control and Prevention A very detailed list of diseases.